WHAT IT TAKES TO LIVE WITH NT1

Narcolepsy type 1 is a serious neurological disorder caused by the loss of a brain chemical called orexin

Because orexin plays a key role in regulating sleep-wake cycles in the brain, narcolepsy type 1 (NT1) can impact emotions, daily responsibilities, and various aspects of everyday life.

Hear from people with NT1 as they walk us through what it takes for them to live with this condition

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Because I was a high functioning human, a high achiever, excelled athletically, people just chopped it up as, “Justice is tired, enjoys a good nap.” My life is gonna be different than what I expected it to be. Narcolepsy is incredibly difficult to live with. You have to keep pushing forward. Giving up’s not an option. My name is Casey. My name is Justice. I'm Tara, and I have Narcolepsy type 1.

WHAT IT TAKES TO UNDERSTAND NT1

With NT1, the balancing act between feeling tired and energetic is disrupted without orexin

NT1 has nothing to do with laziness. Due to a loss of a brain chemical called orexin, you may never feel refreshed or energized, no matter how much rest you get.

Explore the science behind NT1

...it isn't my fault. It's something going on with my brain, so I definitely think over time that’s helped me coming to terms that, like, it isn't my fault.

—TARA, living with NT1

Woman with narcolepsy type 1 studying at her desk

Even though I’m on medication, symptoms are still a thing that I need to deal with.

—JUSTICE, living with NT1

Woman with narcolepsy type 1 fixing her collar in a bathroom mirror

WHAT IT TAKES TO CARE FOR NT1

NT1 management is a journey– there’s no quick fix

Because everyone has a unique experience, it may take time to find ways to manage your NT1 that are right for you and your lifestyle.

Learn more about NT1 care

Get personalized access to stories of others with NT1, helpful resources, tools, and reminders

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Woman with narcolepsy type 1 sitting on the steps of her front porch and smiling

Takeda’s Commitment

Our commitment is to share ‘What It Takes’ to lessen the challenges of living with narcolepsy type 1. By raising awareness of NT1 as a serious and often misunderstood condition, we aim to amplify the voices of those living with it, striving to bring understanding to their journey with this neurological condition.