Woman with narcolepsy type 1 sleeping in bed

IT TAKES

nap gaps and relentless
scheduling to show up at work

WHEN LIVING WITH MY
NARCOLEPSY TYPE 1

—JUSTICE, living with NT1

Explore the impact of narcolepsy type 1 (NT1) through the lens of people who live with the condition as they share their compromises, concessions, and coping strategies living with this disease.

Learn about the brain chemical behind your NT1 symptoms

Man with narcolepsy type 1 sitting in a chair and talking in a support group

IT TAKES

fighting the sleepiness
and brain fog daily

WHEN LIVING WITH MY
NARCOLEPSY TYPE 1

—CASEY, living with NT1

Learn about the brain chemical behind your NT1 symptoms

Woman with narcolepsy type 1 sitting at a table and eating with her partner

IT TAKES

continuously planning around my
symptoms to have a date night

WHEN LIVING WITH
NARCOLEPSY TYPE 1

—TARA, living with NT1

Learn about the brain chemical behind your NT1 symptoms

WHAT IT TAKES TO LIVE WITH NT1

Narcolepsy type 1 is a serious neurological disorder caused by the loss of a brain chemical called orexin

Because orexin plays a key role in regulating sleep-wake cycles in the brain, narcolepsy type 1 (NT1), or narcolepsy with cataplexy, can impact emotions, daily responsibilities, and various aspects of everyday life.

Hear from people with NT1 as they walk us through what it takes for them to live with this condition

Watch trailer

See their stories

JUSTICE: Because I was a high-functioning human, a high achiever, excelled athletically, people just chopped it up as “Justice is tired, enjoys a good nap.”

TARA: My life is gonna be different than what I expected it to be.

CASEY: Narcolepsy is incredibly difficult to live with. You have to keep pushing forward. Giving up is not an option. My name is Casey.

JUSTICE: My name is Justice.

TARA: I'm Tara, and

ALL: I have Narcolepsy Type One.

THE COPING CANVAS

Join The Coping Canvas and help bring to light the invisible challenges of narcolepsy.

We want to hear about your daily coping strategies for living with narcolepsy and turn them into art through the lens of an artist living with NT1.

Learn more

WHAT IT TAKES TO UNDERSTAND NT1

With NT1, the balancing act between feeling tired and energetic is disrupted without orexin

NT1 has nothing to do with laziness. Due to a loss of a brain chemical called orexin, you may never feel refreshed or energized, no matter how much rest you get.

Explore the science behind NT1

...it isn’t my fault. It’s something going on with my brain, so I definitely think over time that’s helped me coming to terms that, like, it isn’t my fault.

—TARA, living with NT1

Woman with narcolepsy type 1 studying at her desk

Orexin loss from NT1 affects more than just sleep and wake

From muscle control to attention, NT1 can have a large impact on daily life.

See how orexin works

Even though I’m on medication, symptoms are still a thing that I need to deal with.

—JUSTICE, living with NT1

Woman with narcolepsy type 1 fixing her collar in a bathroom mirror

WHAT IT TAKES TO CARE FOR NT1

NT1 management is a journey—there’s no quick fix

Because everyone has a unique experience, it may take time to find ways to manage your NT1 that are right for you and your lifestyle.

Learn more about NT1 care

Get personalized access to stories of others with NT1, helpful resources, tools, and reminders

Fill out the form below, and we’ll get in touch.

First name^*

Last name^*

Email^*

ZIP code^*

How are you or your loved one managing NT1 right now?^*

How many days per week does NT1 interfere with your daily life?^*

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Woman with narcolepsy type 1 sitting on the steps of her front porch and smiling

Takeda’s Commitment

Our commitment is to share “What It Takes” to lessen the challenges of living with narcolepsy type 1. By raising awareness of NT1 as a serious and often misunderstood condition, we aim to amplify the voices of those living with it, striving to bring understanding to their journey with this neurological condition.

WHAT IT TAKES TO LIVE WITH NT1

Narcolepsy type 1 is a serious neurological disorder caused by the loss of a brain chemical called orexin

Sign up for the latest news in narcolepsy type 1 (NT1)

Hear from people with NT1 as they walk us through what it takes for them to live with this condition

Link Copied

THE COPING CANVAS

With NT1, the balancing act between feeling tired and energetic is disrupted without orexin

...it isn’t my fault. It’s something going on with my brain, so I definitely think over time that’s helped me coming to terms that, like, it isn’t my fault.

Orexin loss from NT1 affects more than just sleep and wake

Even though I’m on medication, symptoms are still a thing that I need to deal with.

NT1 management is a journey—there’s no quick fix

Get personalized access to stories of others with NT1, helpful resources, tools, and reminders

Takeda’s Commitment

Follow us on social

You are about to leave whatnt1takes.com and enter a website operated by an independent third party.

You are about to leave whatnt1takes.com and enter a website operated by an independent third party.

WHAT IT TAKES TO LIVE WITH NT1

Narcolepsy type 1 is a serious neurological disorder caused by the loss of a brain chemical called orexin

Sign up for the latest news in narcolepsy type 1 (NT1)

Hear from people with NT1 as they walk us through what it takes for them to live with this condition

Show transcript

Link Copied

THE COPING CANVAS

With NT1, the balancing act between feeling tired and energetic is disrupted without orexin

...it isn’t my fault. It’s something going on with my brain, so I definitely think over time that’s helped me coming to terms that, like, it isn’t my fault.

Orexin loss from NT1 affects more than just sleep and wake

Even though I’m on medication, symptoms are still a thing that I need to deal with.

NT1 management is a journey—there’s no quick fix

Get personalized access to stories of others with NT1, helpful resources, tools, and reminders

Takeda’s Commitment

Follow us on social

You are about to leave whatnt1takes.com and enter a website operated by an independent third party.

You are about to leave whatnt1takes.com and enter a website operated by an independent third party.