Woman with narcolepsy type 1 posing outdoors while wrapped in a knitted blanket

IT TAKES

a comprehensive approach, going beyond symptom management, strategies, and work-arounds

TO LIVE WITH MY NT1

—TARA, LIVING WITH NT1

The patients featured on this website are paid speakers for Takeda and/or have been compensated for their participation. Their stories reflect individual experiences, which may vary.

Multiple treatment modalities may be used to manage symptoms of narcolepsy type 1 (NT1)1

Managing NT1 symptoms can be challenging, often requiring a multidisciplinary, multimodal approach.1,3

>50%

OF PEOPLE WHO WERE RECEIVING PHARMACOLOGICAL TREATMENT FOR NARCOLEPSY WERE ON >1 MEDICATION2*

*Results from a 15-minute online survey conducted in February 2022 of 88 US adults with NT1 (n=53) or NT2 (n=35).2

Man with narcolepsy type 1 splashing cold water on his face

Patients may utilize a variety of symptom management approaches, in addition to treatment1,4

It can be important to engage your patients with NT1 in shared decision-making in order to tailor an optimal management plan that addresses their unique needs. This includes an understanding and discussion of potential medical and nonmedical approaches to holistic care.

Napping

or scheduling sleep around work, school, or other activities

A person laying in bed and a clock on the wall icon

Sleep hygiene

like following a bedtime routine

A woman sleeping in the night and awake in the daytime icon

Diet modifications

such as avoiding alcohol or excessive caffeine

A burger and an apple on opposite sides of a balanced scale icon

Psychological support

A tired person feeling moody icon

Patients may need a comprehensive approach to NT1 symptom management4

>50%

of patients with narcolepsy reported trouble with memory or concentration2*

92%

of patients with narcolepsy reported excessive daytime sleepiness (EDS) as the most troubling symptom2*

~80%

of patients with NT1 or NT2 reported feeling isolated, depressed, or anxious2*

74%

of patients with NT1 reported cataplexy as one of their most troubling symptoms2*

*Results from a 15-minute online survey conducted in February 2022 of 88 US adults with NT1 (n=53) or NT2 (n=35).2

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References

1. Krahn LE, Zee PE, Thorpy MJ. Current understanding of narcolepsy 1 and its comorbidities: what clinicians need to know. Adv Ther. 2022;39(1):221-243. doi:10.1007/s12325-021-01992-4 2. Ortiz LE, Morse AM, Krahn L, et al. A survey of people living with narcolepsy in the USA: path to diagnosis, quality of life, and treatment landscape from the patient's perspective. CNS Drugs. 2025;39(suppl 1):S23-S36. doi:10/1007/s40263-024-01142-8 3. Maski K, Trotti LM, Kotagal S, et al. Treatment of central disorders of hypersomnolence: an American Academy of Sleep Medicine clinical practice guideline. J Clin Sleep Med. 2021;17(9):1881-1893. doi:10.5664/jcsm.9328 4. Morse AM, Kim SY, Harris S, Gow M. Narcolepsy: beyond the classic pentad. CNS Drugs. 2025;39(Suppl 1):S9–S22. doi:10.1007/s40263-024-01141-9